NCCR Data Platform — Metadata & Documentation

The National Childhood Cancer Registry (NCCR) Data Platform is a secure, interactive system for exploring, discovering, and requesting de-identified cancer data for children, adolescents, and young adults (ages 0–39).

This site provides machine-readable metadata for the platform’s datasources and data dictionaries, published as linked data using standard semantic web vocabularies.


What’s here

Section Description
Metadata RDF ontology files, dataset catalog, and variable-level metadata
Data Sources Descriptions of the 9 NCCR datasources
Vocabulary Classes and properties defined in the NCCR vocabulary
Usage & Examples Code snippets for Python, R, and SPARQL

Download files

File Description
nccr_vocab.ttl Vocabulary — OWL ontology (schema)
nccr_datmm.ttl Dataset catalog — DATMM 6.0.0
nccr_instances.ttl Instance data — 28,620 triples across all 9 datasources

Citation

Childhood Cancer Data Initiative (CCDI) National Childhood Cancer Registry (NCCR) Data Platform: An interactive data platform for NCCR cancer statistics [Internet]. National Cancer Institute. DOI: 10.71925/byd9-3d93.